Fascinating story! As a member of a medical drama group of the Penn Sate College of Medicine in Hershey, Pennsylvania, I was involved in a few plays discussing the problem od patients ceizing to feel like human beings, and becoming “data” after becoming diagnosed… I can’t even imagine what that really looks like, but have some sort of idea… So I wanted to say “I am here :)”, and send you some positive energy:)
This is a truly revolutionary idea, and it brings beauty to what would otherwise be a very said story. But, as you said, sadness is not what you feel like when reading and hearing your story, it’s an awe to the technology, humanism and creativity.
I will share your story and hope the collective energy will bring cure to you and many other patients out-there who need similar kind of help.